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Principles and Practice in Biobank Governance

Download or Read eBook Principles and Practice in Biobank Governance PDF written by Mark Stranger and published by Routledge. This book was released on 2016-04-15 with total page 442 pages. Available in PDF, EPUB and Kindle.
Principles and Practice in Biobank Governance
Author :
Publisher : Routledge
Total Pages : 442
Release :
ISBN-10 : 9781317075875
ISBN-13 : 1317075870
Rating : 4/5 (75 Downloads)

Book Synopsis Principles and Practice in Biobank Governance by : Mark Stranger

Book excerpt: Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Europe, America, Australia and Asia to focus on these challenges. Current models of governance are critiqued, principles and policies are debated, and new models and theoretical frameworks are presented through this intellectually stimulating, informative volume. This truly international volume offers new insights from a range of disciplinary perspectives and will be essential reading for policy makers and scholars across a range of social sciences, including sociology, bioethics, law and social policy.


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